Getting Through the Day

Sometimes when I wake up in the morning I feel like laying in bed all day and just looking at pictures of my dad and crying.  And sometimes during the day I feel like crawling into bed and doing the exact same thing.

Here are just a few things that get me through the day:

1. Knowing my dad is watching over me- I know that whatever I’m doing is making my dad happy. He wouldn’t want me to completely stop my life and sit home and sulk. As much as I would like to do that, it’s important for me to grieve in a healthy way.
2. Connecting my dad to every part of my day- I love celebrating my dad’s life and bragging to everyone on how cool and loveable he was. If I was in a conversation with someone I feel comfortable with, there’s a high chance I’ll bring up my dad and an amazing memory to go with the conversation. Talking about him with the right people makes me feel better, but not all teenagers are comfortable with that.
3. Doing it all for my dad- In my eyes, everything I do I do it for my dad. He’s my motivation in life. From the smallest goals to the largest tasks, I see my dad at the end of every destination.

Take everything step by step and day by day. Appreciate the little things in life. And of course, always keep your family as your number one priority.

Coping Strategy #5

Music!

Listening to music is beneficial. Having creative lyrics to listen to helps find yourself and explain those feelings in a way that you could not have put in words. Not only is listening to music helpful, but writing music is a great creative outlet to help cope with hard circumstances. Music lowers stress and anxiety levels. The stress hormone, cortisol decreases with music, leading to a more positive mood and outlook on life. Through research many psychologists have found music therapy helps build self-esteem, confidence, and cognitive functioning.

My dad and I loved playing guitar together. I will always cherish the memories of us sharing our enthusiasm for the instrument. Over the last few years, my guitar madness has diminished as school took over my life. The few times I still play the guitar, it calms my emotions down and brings back amazing memories of my dad. Playing an instrument is therapeutic- you get to forget what’s happening with your parent’s cancer and you focus on your music.

Music is a great escape from the real world. It lets your brain take an imaginative route away from your parent’s cancer.

The Comparing of Grandparents

When you tell people you have a sick parent at the age of 12-18 years most people don’t know how to react, especially your friends that are the same age as you. Many of them will compare your parent’s diagnosis /prognosis to their grandparent’s because that’s how cancer touched their heart. I personally had a lot of problems with this. Although my heart truly goes out to anyone touched by cancer when their grandparent was the victim, often times children have a closer bond to their parents than their grandparents. Your friends are going to tell you, “I know what you’re going through. My grandpa/grandma had cancer.” They don’t know what you’re going through. You do not have to depend on your grandparents as much as your parents. You do not have the same bond with parents as your grandparents. (Unless you live with your grandparents, then I would understand how that is relatable.)

If your friends are telling you they know how you feel because of their grandparents sickness, just let them think that. This is not anything to worry about. They are just trying to help you and support you. You are going to come across many people who don’t understand you. Majority of your acquaintances  won’t even come close to knowing your pain, but know that everyone is trying to help you get through this. Don’t fuss over the small comments that make you upset. Instead, be thankful that people are trying to support you.

Do Something for Yourself

During the time my dad was sick, I was so busy taking care of him, I stopped taking care of myself. I realized I needed to start doing something for myself before I go crazy.

Having a sick parent is a lot to deal with, especially as a teenager. You already have other problems like, focusing on the SAT’s, relationship scandals, friend drama, and so much more. No matter what struggles you are overcoming it is important to do something for yourself. Take at least half an hour of your day to do something that makes you happy, genuinely happy. You could start a new hobby, learn a language, exercise, anything. You could go for a bike ride in your neighborhood or start an art project. Breathing exercises, yoga, meditation, and general exercise all help you relax. If you don’t have time to start a new hobby or do something for yourself, definitely do something that will help you relax. Try not to think about your cancerous stricken parent for half an hour of your day. Take your mind off the stress cancer brings. As hard as it is to forget something that big, you have to remember you have your whole life ahead of you and this is just the beginning of all the curve balls life will throw at you. It’s important to learn how to cope with these curve balls by doing something for yourself!

Life Changing Moments

After my dad accepted his life was coming to an end, he was fighting just to see my sister and I graduate. He told his oncologist to do whatever it takes to keep him alive until June 20, 2013 (the day of my graduation). Four days after my dad passed away my sister graduated from The George Washington University. Five weeks after he passed away I graduated high school. It was one of the hardest days of those 5 weeks. As I was walking across the stage receiving my diploma, the superintendent of the school district shook my hand and said, “Your dad is so proud of you.” Walking down from the stage tears started falling from my eyes. Despite the high number of family members and friends that came to see me graduate, the only person I really wanted there was my father. At that moment, it hit me. I’m not going to have my dad at my college graduation, my wedding, the birth of my children, and so much more. I also realized he will always be with me-my dad will be in my heart even if he’s not physically there.

If you are in the sad situation where your parent’s life is coming to an end or you lost a parent due to cancer at a young age, know that your parent wanted to be at every single life changing moment. Whether it’s your first day of preschool or your first day of your new job, make sure to keep your parent in your heart. It’s going to be hard doing so many things without them, but it will have to become a new norm. Appreciate your loved ones while you can and make as many memories as possible because you don’t know what tomorrow will bring. I hope you find a way to get through events of your life while dealing with the hardships of the “C word”.

Giving Back to the Community

Cancer is a scary word. It’s even scarier when it’s in your life and effecting your parent in the most negative way possible. One month after my dad was diagnosed with fourth stage cancer, I started a Relay for Life team for the youth of my city. I educated others on cancer (specifically Colon) and healthy diets as well as fundraised for American Cancer Society. Years later, I am still involved and always will be.

To cope with having a sick parent, it may help to give back to the community. Get involved in community walks, like Relay for Life. One could even start a club or team at their school. There is so much someone could do to help change the life of cancer patients and their families. You could volunteer at a hospital, sell your art work and donate the money to a cancer research lab, or just spread the word about the importance of doctor visits and screenings.

To get involved with Relay for Life visit:

http://www.relayforlife.org/?gclid=CJT3hYux7rgCFRDZQgod4BcASg

Coping Strategy #4

Pet Therapy!

During such a hard time in your life it’s important to have your escape and your “me time”. Something that may help you is pet therapy. It helps your emotional, social, and cognitive functioning while releasing stress. Remember that your family is going through a whole lot of pain and stress, so it is important to support them as much as possible.

In my family, it was time for me to gain an indefinite amount of independence and control my emotions to help my family in every possible way. I always felt like I had to hide the emotions the “C word” caused because I thought it was more important if I were my parents’ support system. Only in the past few weeks I realized I had the right to feel the way I do. I started doing things for myself. Sometimes I just randomly go to the dog park (without my dog, because he’s so big I can’t handle him) and watch the dogs play because it makes me happy. Sometimes I just sit next to my big, furry four-legged friend and my worries go away. Sometimes (more like all the time) I look at pictures of my dog because he’s so cute and no matter how sad or mad or angry or frustrated I am with the world, he’ll always bring a smile to my face.

Pet therapy not only helps us kids with a parent with cancer, but it helps our sick parent too. My dog, Duke and my dad were best friends. My dad called Duke his son and made jokes referring to how he liked my dog better than his two daughters. I strongly believe during the two years my father was sick, one of the things that kept him motivated to fight the cancer was Duke. Duke had a positive effect on my dad that no one will forget. Dogs sense when something is wrong. Usually when my dad walked in through the front door, Duke would greet him by jumping on him and licking his face. During the last three months of my dad’s life, Duke knew my dad couldn’t handle his jumps anymore. When my dad was in Hospice Care, Duke would calmly sit next to him and not bother a single soul. (Duke is about 115 pounds and one of the most jumpy, friendly, rambunctious dogs ever. For him to just sit is rare.) I wish I could thank Duke for everything he’s done for my dad.

The Hypnotist

About two weeks after my dad passed away I had no choice but to finally attend school. In my AP Psychology class we had a hypnotist come in and educate our class on various things in the field and even hypnotize someone to forget their biggest fear. The first day she lectured us she brought up how she could ‘cure’ cancer by hypnotizing the patient. She showed us a book about how hypnotization cures cancer. I found it quite inconsiderate. My eyes automatically were full of tears. Fortunately I had my best friend sitting right next to me. She asked me if I was okay and I just nodded. Unfortunately we were sitting in the front row. It took everything in me to not jump out of my seat and hit her. She started saying insulting things like, “Those who have cancer can’t handle the stresses of life. Us healthy people fight off our abnormal cells. Only the weak get cancer.” She kept going on and on. By this time, tears were running down my face. I simply got up and left the room. Everyone in my class saw me crying and leave. My teacher followed me out and hugged me. She apologized for the hypnotist’s crude behavior and explained that she’s never mentioned cancer before. I went to the bathroom, wiped my tears and faked my smile until school was over.

Thankfully the hypnotist was only there for about 4 days. On her last day lecturing us she asked the class to each write 1-2 sentences on what we’ve learned. I wrote her a full page letter about the negative feelings she caused during such a hard time. It was as if  a weight was lifted off my shoulders. I realized I had the right to be offended, especially when it comes to such a touchy subject.

I’m not saying I’m against hypnosis for cancer patients. You should definitely tell your parents to try it if they want! I’m just against people with a negative outlook when it comes to cancer. Cancer can come upon anyone, not just ‘the weak’. School gets really hard when cancer has touched your heart and all your peers speak of it in a rude manner. They’ll never realize their manner until cancer touches their heart, but let’s pray that won’t happen.

If someone offends you on the subject of cancer, let them know your feelings. It’s more painful to bottle up bitter feelings that will make you more emotional when your life is already a roller coaster of pain.

Friends

Most of your friends won’t understand what you’re going through. This is a unique situation and majority of kids and teenagers don’t know how to respond to your feelings.

All of your friends will be there in the beginning. Be prepared for people to stop showing that they care. Your friends will always care, but they just may not show it as much. It’s natural for your friends to carry on with their lives.

All of my friends were there for me right when my dad was diagnosed with cancer and when he passed away. As time went on, people stopped showing that they cared and got so involved in their petty problems. The harder part of finding out your parent has cancer is when the chemotherapy kicks in and you see the negative changes of the person who brought you into this world. Yes, the news is petrifying but you have all the support at that time. When it gets really tough, most people have forgotten what you’re going through. Losing a parent is probably one of the hardest things to overcome. At first you don’t realize what’s going on and it hasn’t hit you yet. That’s when every single person is there for you. But when it does hit you, only a few people will still be there. I’m thankful for the friends that still go out of their way to do nice things for me during such a hard time of my life as well those who cared about my dad’s health the full two years he was sick.  People will complain to you about trivial and insignificant problems in their life. If you experience this, don’t take it too hard- most of your friends won’t understand what’s going on in your parent’s body. In honest truth, it broke my heart when my friends were being unsupportive. I was shocked to see those who never even bothered reaching out to me.  I never really told anyone how much pain I was really in for the past two years, so maybe that was my fault. You do have the right to be mad or disappointed in your friends; you are going through something extremely hard and life changing and all the support helps.

Remember to communicate with your friends. If you need something, don’t be afraid to ask. If you don’t like something they did, tell them. If they hurt your feelings or offended you in anyway, let them know. It’s a two way street with your friends, so make sure you are reaching out to them as well. Your friends also don’t know how to react to such horrific news so cut them some slack- not too much though.

Internal Locus of Control vs. External Locus of Control

Internal Locus of Control- Internal Locus of Control means if something happens in your life you feel like you can change the situation or influence it. You feel like you have more control over the hardships in your life. For example, if your parent was diagnosed with cancer you would take them to chemotherapies, be positive around them, and do research on cancer (exactly what I did.)

External Locus of Control- External Locus of Control basically means you feel like whatever has happened in your life has happened because of your fate or destiny. You feel like there is nothing you can do about it. So if your parent was diagnosed with cancer, you feel like this is your destiny and that your life is going to suck now and you cannot do a single thing about it.

Remember, if your parent has cancer you are not the only one going through it. There are millions of kids who have been in your shoes (myself included). Your family is also experiencing the same struggles you are. Some cases might be worse, some might be better but there will always be someone in your proximity to understand your pain and struggles. I suggest taking advantage of those who truly understand how hard this is and showing your support to those in a similar situation. If you know someone at your school with a parent who has cancer that you rarely talk to, try reaching out to them and discuss your problems and offer them your support. I have done this many times and it’s definitely paid off. I know some people may be shy or some just don’t like sharing their parents diagnosis/prognosis, but it never hurts to try!

If you feel like your life sucks and you cannot go any further in life because your parent’s cancer feels like a barricade, you are mistaken. Don’t get me wrong, I felt like that for a very long time. Sometimes I still feel like that. Thoughts of what could’ve been cross my mind all the time. Life is unfair and hard at times. But remember what you go through will make you a stronger person after the obstacles of cancer. Try not to think about the past so much or what could’ve been. Focus on the present and future. If you are unhappy with something in, change it. You control your life and your happiness.

Coping Strategy #3

Sleep!

Sleeping is an essential part of the human body’s daily routine. We often forget how important our sleep is because most of us are too busy thinking about a bigger problem- our parent’s cancer.

  • Infants should get about 14 hours of sleep.
  • Children and teenagers should get about 9-10 hours of sleep.
  • Adults should get about 8 hours of sleep.

Getting the right amount of sleep makes learning new things and memorizing much easier. It also helps stabilize your metabolism and blood pressure. Your irritability and mood swings significantly decrease. Sleep keeps your cardiovascular system and immune system healthy as well.

When you find out your parent has cancer (or there was a change in the chemotherapy, chemotherapies aren’t working, your parents’ life is coming to an end, etc.) it is natural to feel unbelievably tired. The day I found out my dad was dying I cried so much and my head was throbbing a ridiculous amount. I fell asleep really quickly but I had a very hard time staying asleep. I probably woke up every single hour. I ended up waking up every hour when my dad was on Hospice Care. I also woke up multiple times when my dad was sick and an excessive amount the few days after a chemotherapy cycle. I still wake up every single hour while coping with my father’s death. I feel so tired during the day and I am always lacking energy now. All I want to do is sit around and have a pretend conversation about my dad.

But then, I had a realization. I seriously needed to get my life together. I started trying a lot of things to make me tired during the day and relaxed at night leading to a good nights’ sleep.

I started having tea after dinner to help me relax. (Obviously the tea is decaffeinated) I still have my tea and I love it! I usually have the Chamomile tea (Sleep Time Tea) from Trader Joe’s or the decaffeinated tea from the brand, “Mighty Leaf”. Mighty Leaf has delicious flavors like Organic African Nectar, my favorite! The two weeks after my dad passed away consisted of spending time with family and listening to everyone give their condolences (which is very tiring). I started going back to school which was also very draining for me because I had so much make up work. Going to school also took out all of the energy in my body to fake my smile and pretend I was okay considering not a single person understood my pain. Summer came around and there were enough house errands and family members to see to exhaust me. The days I had nothing to do, I found a hobby, like practicing an instrument or exercising.

Sleeping the full 8-10 hours is part of being healthy and being kind to your body. If you’re having trouble sleeping at night and all you think about is your sick parent, take some time for yourself before you go to bed. Have a bubble bath. Maybe try some delicious tea. You could even do yoga or journal!

Remember you have the right to feel the way you feel. Having a parent with cancer is one of the hardest things to overcome. Don’t let your worries and concerns affect your sleep. It’s important to wake up refreshed (and be ready to deal with the new day’s emotions). It’s  vital to keep your body healthy when trying to make your parent’s body healthy. Never forget about yourself and your needs.

Hard Times do not Excuse Poor Decisions

Everyone faces adversity. Every single person. There are different extremes though. One person’s adversity might be not getting into their dream college of UC Berkley or Stanford and another’s might be something more real, like losing a parent to cancer. (On a totally different note- not getting into your dream school is not the end of the world. It should be a motivation to work harder in the future. Also, you can go to any school and succeed. There are always options of transferring, graduate school, etc.)

Going through a rough patch in your life is no excuse for poor decisions. I personally know many people who have had a parent with cancer (the parents are fine now) and the kids went down the wrong path of life. They stopped caring about school, relationships with friends and family, and started caring too much about drugs and alcohol.  Once  you are down that path, it is very difficult to turn around and make the right life decisions. But, it’s definitely possible. One could take the help of family or friends or even seek for professional help, like a life coach or therapist. Group therapy also helps a lot; you get to sit with a group of people who are relatively going through a similar predicament or phase of life, which then makes it easier to open up about your feelings and your hardships in life. It’s also a great way to save money!

Kids who Have a Parent with Cancer

As a parent, one of the hardest things to do is tell your kids you have cancer. No parent would ever anticipate this coming…who would think about something so scary in their spare time; “Hey. if I get cancer one day, how would I tell my beloved kids?” A parent can’t wait too long to tell their kids something is wrong, no matter what age, kids pick up on things like this quickly.

I vividly remember the day my dad told me he had cancer. It was May 22, 2011. I thought it was going to be a regular day with Sunday brunch, study sessions, and movies with my family but then one word changed my whole life: cancer. Feelings of fear and uncertainty began to overshadow my dreams and aspirations in my academic and personal life. I then had so many thoughts and questions running through my mind.

Who’s my dad’s doctor? Is he a good doctor? Where did he go to school? Is the doctor even a ‘he’? What stage is the cancer? Where exactly is it? Am I going to be able live my life normally? Is my academic life going to be jeopardized? When does the chemotherapy start?

and the scariest of them all

Am I going to be okay? Are my mom and sister going to be okay? Is my own father [the man who taught me how to talk, walk, swim, bike, tie a shoelace, play guitar, solve physics and calculus problems; the man who taught me the meaning of life], going to be okay?

At times, we forget that the “C word” is hard for everybody in the family- not just the patient, not just the spouse, not just the older sibling, not just the younger sibling, but every single person. No matter what kind of cancer or what stage the cancer has progressed to, it is one of the scariest diseases for all countries across the globe.

As a kid, one of the hardest things to do is hear that your parent has cancer and you cannot do a single thing about it. At least in my case as a high school student I couldn’t cure my dad, no matter how many things I tried. I felt so helpless. However, as much as I could have done, I did with no doubt in my mind. Everything from finding healthy diets to learning how to use an oxygen tank required 200% of my energy and every inch of hope I had.

What is Cancer?

Many kids who have a parent or sibling diagnosed with cancer don’t really understand what it means- they just know it’s bad news. They see parents crying, doctors fighting, and relatives flying in.

Cancer is an abnormal cell growth in a part of a body (or parts of a body) that are growing rapidly. Cancer can be found in any part of your body, even in your blood. However, there are ways to treat cancer- like chemotherapy, radiation, and surgery.